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The Revised Fundamentals of Caregiving

A Novel

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In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape.
For Ben Benjamin, all has been lost—his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client—a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy—he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world.
Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev’s ailing father—a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life.
Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life’s terrible surprises as well as what it takes to truly care for another human being.

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    • Publisher's Weekly

      June 11, 2012
      Benjamin Benjamin, the narrator of Evison’s tragicomic third novel (after West of Here), describes himself as an “unemployed stay-at-home schlub whose wife gives him an allowance.” He’s actually even more pathetic, which is one of the problems with this picaresque: at 39, getting divorced, Benjamin is haunted by an immense unspecified loss and eking out a living as a caregiver to teenage Trevor, who suffers from muscular dystrophy. He’s good at the job, his first after a long stint as a full-time dad. He and Trevor construct a map pinpointing odd Americana (“Mystery houses, vortexes, crop circles, and other unexplained phenomenon”), more of an imaginary itinerary, given Trevor’s condition; Ben and Trevor do finally end up on the road, however, allowing Evison to demonstrate his considerable comic gifts, despite the grimness of the situation. Flashbacks reveal Ben’s past (a wife; two kids) and Evison builds a palpable sense of doom, but Ben’s heartbreaking personal tragedy is revealed too late to make a meaningful impact. Still, Evison is a skilled, perceptive writer: one girl Ben and Trevor encounter en route notices them “with the expert dispassion of the teenage misfit.” 50,000 first printing, 5-city author tour. Agent: Mollie Glick, Foundry Literary + Media.

    • Library Journal

      March 15, 2012

      No word yet on the plot of this latest from the author of the award-winning All About Lulu and its well-regarded follow-up, West of Here, but as suggested by an essay of the same name Evison wrote, it will deal with caregiving quandaries in a sharp-tongued and forthright way.

      Copyright 2012 Library Journal, LLC Used with permission.

    • Library Journal

      July 1, 2012

      Evison's follow up to West of Here is a personal, focused work rather than a sweeping epic. Benjamin Benjamin Jr. is a former stay-at-home dad. His two young children died in a tragic accident after which his wife left him. Broke and grieving, Ben signs up for a caregiver class and lands a job tending Trev, a teenage boy with muscular dystrophy. The unlikely duo set out on a cross-country road trip to take in as many bizarre highway attractions as possible en route to visiting Trev's estranged father. They pick up Dot, a runaway, and Peaches, a pregnant farm girl, and learn about forgiveness, especially about forgiving oneself. VERDICT Evison injects some levity with Trev's horny commentary and Ben's wry retorts, blending humor, sharp dialog, and a rich and detailed backstory into a sympathetic, bittersweet novel. This is one of the more successful entries in the "Sad Dad Lit" subgenre (think Thelma Adams's Playdate, Greg Olear's Fathermucker, or Emily Jane Miller's Brand New Human Being). A worthy purchase. [See Prepub Alert, 2/27/12; this title was highlighted at the Fourth Annual Shout & Share at BookExpo America 2012 ow.ly/buYSD--Ed.]--Christine Perkins, Bellingham P.L., WA

      Copyright 2012 Library Journal, LLC Used with permission.

    • Kirkus

      June 15, 2012
      Evison manages to find considerable humor in this plaintive story of care giving and receiving. Narrator Ben Benjamin is greatly in need of caregiving himself, so he doesn't have much left for Trev, his adolescent charge, who has Duchenne Muscular Dystrophy and is confined to a wheelchair. Ben has learned everything about his job from The Fundamentals of Caregiving, a book generous in providing acronyms meant to be helpful (for example, ALOHA: Ask Listen Observe Help Ask again) but scanty in providing practical advice. He takes the job of caring for Trev because--well, frankly because he's broke, he's responsible for a family tragedy, and his wife has left him, so the minimum wage job has a desperate appeal. Ben finds that providing care for Trev helps give his life some purpose. Trev's father, Bob, had deserted his family years before, shortly after the diagnosis of MD was made, but he's now making some attempts to get back in touch with his son, though Trev resolutely rebuffs him. Then Elsa, Trev's mother, finds out that Bob has been in a car accident in Salt Lake City, and against her wishes, Ben decides to take Trev on a road trip to see him, a trip that becomes more an end in itself than a means to see how Bob is doing. Along the way from Oregon to Utah they pass through towns, pick up Dot, a punky but goodhearted girl, befriend Elton and his acutely pregnant girlfriend, Peaches, and are followed by a mysterious man in a Skylark. Ben expects the mystery man to be a private detective his estranged wife has set on him, but he turns out to be someone quite different. A lively narrative with a poignant core and quirky, lonely characters.

      COPYRIGHT(2012) Kirkus Reviews, ALL RIGHTS RESERVED.

    • Publisher's Weekly

      October 29, 2012
      To avoid facing his past, Benjamin Benjamin sets to helping others as a caregiver. After taking a class called the Fundamentals of Caregiving at a local church, his first job lands him with Trevor, a 19-year-old with advanced muscular dystrophy who has disengaged from the world. But a road trip and a series of exploits find the two men returning to worlds they thought were lost. Narrator Jeff Woodman’s portrayal of Benjamin captures his contradicting self-awareness and self-deceit as well as his vulnerabilities. But his rendition of Trevor’s voice is the most impressive. Woodman avoids the pitfall of trying to portray the character’s disability, instead using a minimalist approach that captures Trevor’s essence. Additionally, Woodman lends the supporting cast distinct, vibrant voices and provides narration that will keep listeners engaged until the very end. An Algonquin hardcover.

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